Showing posts with label Zander. Show all posts
Showing posts with label Zander. Show all posts

Sunday, December 14, 2008

Sunday, December 14, 2008 in the Evening

Good evening all. We hope that everyone is having a restful and warm weekend. Not much going on around here. As you can see from the picture, Christie created our Christmas card, so I decided to scan it and post it to the web.
The boys are doing well and it is hectic around here. Houston's last day of exams is tomorrow and the
last day for school before Christmas is Thursday. Christie is also trying to wrap up things at school before the end of the week.
We are planning on going to visit my Dad and Stepmother in Florida at the end of the week. We need to get out of here and get our minds off of things...if it is possible. I doubt that our minds will be put at ease, but the change of scenery will be good for us as a family.
Although Christmas is quickly approaching, I can honestly say that the spirit of the season is largely overshadowed. It is difficult to know that we will not be able to see Zander's smiling little face as he tears into his first present or wear his Christmas outfit. We are truly thankful for what we have in terms of family and friends, but a huge void will always exist in our lives and in the lives of the people that Zander touched. In time, I hope and pray that understanding and peace will set in.
As our pastor spoke about this morning, Christmas is not about presents, food or any of the other festivities. It is about the one gift that we were all given some 2008 years ago when our Savior was born and laid in a manger. A gift that through faith assures me and Christie that we will see our beautiful baby boy once again.
We love you boys. Rest easy.
Struggling but still pursuing His grace,
Clancy

Tuesday, November 4, 2008

Election Day, November 4, 2008

Good Morning All! Today is the day we have all been waiting for. Tomorrow there will be no news. Yeah! Just kidding. I hope everyone is able to vote today. You will be a part of history today no matter who you vote for. Sorry for my delay in writing, but it has been hectic around the house and at work. Houston and Jackson are doing well and school is going well for both of them. Zander is doing well. We did see the ENT in recent days and this Friday, Zander will undergo surgery to dilate his esophagus again. Once Dr. Kelley finishes this part of the surgery, Dr. St. Charles will insert tubes into Zander's ears and then have an audiologist perform a detailed hearing test. As I understand it, it will be while Zander is under anesthesia so that the test can be as accurate as possible. The goal, at this point is to get Zander hearing something for developmental purposes. The quicker he can hear something, the better off he will be in his development. We are praying that the tubes assist him greatly and we still know that God is in control. Please pray for another miracle in our son's short life. Zander also sees the cardiologist tomorrow. Hopefully his heart problems are continuing to fade, but we will know more tomorrow. Thanks as always for the prayers, comments and encouraging words. We hope everyone is doing well and please keep Zander, Ethan and Raymond Powell in your prayers. I will write again soon. Keep moving along boys, We love you! Clancy

Tuesday, October 21, 2008

Tuesday, October 21, 2008 in the Evening

Good evening all. We hope that everyone is having a great week. Fall is definitely in the air and the weather is wonderful. This time of year in East-Tennessee is beautiful. Above are pictures of the Zman during physical therapy. The first one of him is his way of saying "your hurting me". The second one is of him saying "I'm going to the bathroom" and the third one is of him saying "Look, I'm a big boy!"
Jackson and Houston are at Jackson's soccer practice tonight. This is the last practice of the year and the last game will be this weekend. School is going well for both of them and they have been a great help around the house in recent days. School pictures for Jackson are tomorrow so I am sure that we will have to get up a little early to make sure everything is copacetic with his hair in the morning.
Zander saw Dr. Devoid (his GI doctor) yesterday. Great news. His liver enzymes are where they need to be and he no longer has to take medicine for the cholestasis (jaundice). More importantly, Christie learned how to take out the feeding tube and place a new one in. According to Christie, the doctor took it out and dropped it on the table and said "Okay put it back in." Neither she or I have taken the feeding (G-tube) out and changed it before so after she overcame the abruptness of it being out, she was able to successfully pull it out. Lastly, Dr. Devoid said that he no longer needs to see Zander!!!!Yeah! One doctor down 12, 13 or maybe 10 to go.
Zander also had his esophagus dilated today by Dr. Kelley. We were at the hospital today at 6:00 a.m.; however, we were not released until this afternoon. Dr. Kelley said the esophagus was significantly restricted, but this was to be expected. The procedure went well and Zander has slept for the most part since then. We will see Dr. Kelley again in three weeks for another dilation.
We have heard from Ethan's parents. His is currently about 12 pounds and is doing great. They did go to the transplant specialist in Cincinnati, and thank God, they have been approved for the transplant program. We are so happy for them and it was good to hear from them. We will keep you posted on Ethan's progress.
Tomorrow, we go to see Dr. St. Charles, Zander's ENT doc. We pray tomorrow goes as well as the past two days. We pray specifically for good news regarding Zander's cohanal atresia and hearing issues. We know that Dr. St. Charles is a great doctor and we hope (and pray) that Zander will be able to hear soon.
Please keep Raymond Powell, Ethan and Dr. Ted in your prayers. Thanks to everyone for the comments. It has been hectic and these kind words keep Christie and I going each day.
I will write again soon. Love to all,
Until then,
We love you boys. Sleep tight. Smile big tomorrow Jackson. Keep moving along Zander.
Clancy

Sunday, October 19, 2008

Sunday, October 19, 2008 in the Evening

Good evening all. I hope that everyone is well rested. Sorry for my delay in posting, but we have been busy this past week with Fall Break and just life in general.
Houston and Jackson had a restful Fall Break. Grandma Pat took Christie, Houston and Jackson on the new River Valley Gorge ride, a new boat excursion through the Tennessee Aquarium over Fall break and above are some of the pictures from their adventure.
Zander is doing well. This past week, he discovered his tongue. It has been going non-stop since then. Think Michael Jordan. He is really starting to wiggle around a lot and he is noticing every aspect of what is going on around him.
Starting tomorrow, Zander has doctors and therapists appointments all week. Tomorrow he will see his GI doctor and attend physical therapy. Tuesday he sees Dr. Kelley for another dilation and overall check-up. Wednesday, Zander is going to see Dr. St. Charles, his ENT. Christie will be on the run for most of the week, so please keep her and Zander in your prayers as we should find out quite a bit with this week's appointments. Hopefully we will learn more about the hearing issue from Dr. St. Charles on Wednesday.
We remain prayerful for Zander's health and medical care. We have not heard from Ethan, but trust that he is doing well. Please keep him, Raymond Powell and our doctor friend in Little Rock in your prayers. Get well Ted.
Christie and I are tired, but doing well. We have had a few hiccups this week with insurance and nursing issues, but we know that God will take care of it all.
Thanks as always for the prayers, comments and encouraging words. They mean the world to us and we read and re-read them often. I will write again soon. For now,
Sweet dreams boys. We love all three of you. Keep moving along Zman.
Clancy

Tuesday, October 14, 2008

Tuesday, October 14, 2008 in the Evening

Good evening all. So sorry for my delay in writing, but we have been otherwise occupied with Zman and life in general over the weekend. Houston and Jackson had a great weekend with their Dad and Christie and I had a restful weekend with Zander until about 4:00 a.m. on Sunday morning.
Ashley, Zander's night nurse woke us early Sunday morning. Zander was bleeding from his nose, mouth and trach. We quickly readied ourselves and whisked the little guy off to the ER. On our way he had an outpouring of the red stuff and we proceeded to accelerate our arrival at the ER.
After being in the ER for a few hours and Zander receiving a breathing treatment that assisted in closing the capillaries in his nose, throat and lungs. Dr. Ledbetter (pulmonologist) came in to see the little guy. We felt so bad that we pulled him in from church, but Dr. Ledbetter said we did not need to worry about it. We are fortunate to have him as one of Zander's doctors.
In any event, we were admitted to the hospital and Dr. Harvey (Dr. St Charles partner, an ENT) scoped the nose, the mouth and the lungs/trach on Monday. We are happy that he did not find anything, but at the same time concerned that he did not find anything. While performing the procedure he did enlarge the left nostril/cavity, but told us that Zander will need surgery to correct and expand the nasal cavity and to correct the cohanal stenois in his nose/sinuses.
We were discharged late yesterday and Zander has been just fine since then. There have been no signs of blood at all since coming home. Dr. Harvey and Dr. Ledbetter both said that he may have had an infection that came to a head, so he is now on a new antibiotic. He does not agree with Demoral (sp?) a pain killing medicine that was given to him during or soon after surgery. While the Zman was coming down off the medicine he thrashed around and acted violently. Chrisite and I found it amusing a first, but soon realized that he may be allergic to it.
At this point, Christie and I are trying to catch up on sleep. She got little if any sleep while at the hospital. I came home Sunday night (there is no room at all in the rooms) and tried to sleep, but those efforts did not produce much sleep at all. We are happy and thankful that everything went well. Zander did just fine on his 69 night in the hospital. Before being discharged, Zander had visitors from church.
Machelle and Abby Hall came by to visit today and the above picture is of Zander and Abby. She has been praying for Zander everyday for several months. Zander enjoyed his visit with her and it was good for Christie to see Machelle and catch up.
Thanks to all for the prayers, comments and concerns for our baby and family. We will keep you posted. Please keep Raymond Powell, Ethan and Zander in your prayers. We are blessed. God is still in control and we are thankful for each breath he gives us.
Rest easy boys. Sleep tight Zander. We love you all.
Clancy

Wednesday, October 1, 2008

Wednesday, October 1, 2008 in the Evening

Good evening all! Sorry for my delay in writing, but it has been a hectic week. The boys are doing well and the Zman is resting comfortably tonight.
It has been great weather here and as the pictures above show, the family has been doing some walking throughout the neighborhood taking in the colors and changes that come with the season.
Houston and Jackson are enjoying school. Zander is enjoying his naps and formula. We have 3 doctors appointments over the next two days. Zander sees the endocrinologist, his pulmonologist and one other specialist this week. There are so many, I have trouble keeping up.
Christie and I are doing well. Aunt Christy and Jessie came to visit yesterday. Grandma Pat and Mrs. Serre also stopped in today for tea with the little one. Karen from church came by to see Zander and Christie today. Karen is the children's minister at RBBC and she has been an uplifting spirit for all of us. Thanks Karen for everything.
We hope everyone is doing well. Zander was asking about Ethan earlier and we have not heard from him, but hope all is well. Thanks to everyone for the food, especially the teachers and staff at SMMHS. The delivery girl (Robbin) needs a raise and I know our tips have not compensated her enough. Zander also wanted to give a shout out to all his nurses in the NICU. He said he misses each of you, but he is glad to be at home. You can come see him anytime.
Please keep the Powell family, especially Raymond in your prayers. He is going through radiation and chemo at present and our prayers are with him and his family. God is in control and we are confident that His grace will pull you through Raymond. Thanks for all the comments and prayers....we are truly blessed.
Rest easy boys......keep moving along. We love you all.
Clancy

Sunday, September 21, 2008

Life on the Outside, Day 1 September 21, 2008

As John Newton wrote in Amazing Grace, "Through many dangers, toils and snares...we have already come. T'was Grace that brought us safe thus far...and Grace will lead us home." The Grace of God lead us with Zander home today. After 67 days......we are finally home with our entire family under one roof.
Christie and I spent the night at the hospital with Zander last night. We had him in a private room, but he was monitored from the NICU. We both slept with one eye open and the issues we had last night were more associated with his feeding pump than anything else.
We came home today about noon. Since that time, we have been marveling at Zander and making sure that everything is organized in his room. Special Thanks to PawPaw Charlie for the engineering help with the compressor and the generator. Thanks also to Grandma Judi, and TJ for keeping the boys last night and for the food.
To be frank, Christie and I are both exhausted. We are excited, scared and just glad Zander is home. His brothers have been staring at him all day and both of them held him. We finally gave Zander a bath today and he loved it. He smiled from ear to ear when we washed his hair.
Zander has 24 hour nursing at present. His nurse Kim is with him now and he is resting well.
Enjoy the pictures and I will write again tomorrow. Thanks to all for the prayers, comments and encouraging words. We have at least 14 doctor's visit in the coming weeks and Zander has a long road ahead of him. Prayerfully, we ask that it will go as smoothly as the past 67 days.
Sweet dreams boys. Welcome home son. We love you all.
Clancy

Thursday, September 18, 2008

September 18, 2008 in the Evening

Hi. I am the cute one in the pictures above. Mommy, Daddy and my big brothers came to see me today. My Grandma Pat did also. My parents attended another class to get ready for me to come home.
I am getting out of here on Sunday. I am eating 65 ml every 3 hours during the day and I am eating 35 ml every hour at night. I am ready to sleep in my own bed. I am doing well and have been pretty happy for most of the day.
I will let the pictures speak the thousand words for me tonight. I have learned to blow bubbles. I will write again soon.
Thanks to everyone for praying for me and my family. We still need it and please let me know if we can pray for you. I hope my buddy Ethan is doing well.
I gotta go to sleep. Tell everyone that I love them, including my big brothers.
Zander

Sunday, September 14, 2008

Sunday. September 14, 2008 in the Evening

Is is time to go back to work already? We hope everyone had a restful weekend. The boys had a nice weekend and Jackson had a big soccer game yesterday.
Jackson played forward for the first half and he played very well. The second half, he played goalie and he did well for the first time every playing this position. We will have to work with him on getting in front of the ball, but we were so proud with his efforts during the game.
Not much going on with Zander. His feeds during the day are the same and at night he has been increased to 35 ml every hour. Grandma Pat (Christie's Mom) visited with him on Saturday and Sunday. Paw Paw and Mama Gene came by to see him today as well. We were glad that the Zman was able to visit with them and that they were able to hold him.
Christie and I spent a few hours with him both yesterday and today. We figured out that he likes to have a blanket on his head while he sleeps. We are thinking that he comes from royal bloodlines, hence the need for a silk crown actually a silk blanket, but we are trying to retrace our lineage to research this issue. He also has learned when it is time to eat. As with most males, he pitches a fit if he does not get his food when he wants it.
Christie's last day of work will be Friday. We do not know yet the specifics of when he is coming home, but we do know that it will likely be at the first of the week since the 24 hour nursing will not be here until at least Monday. We hope to find out more in the next few days and we will keep everyone posted.
Thanks as always for the comments, prayers and encouraging words. We are anxious to get him home, but prayers for him (and us) are still needed. It will be a long slow road, but God is with us.
We hope everyone has a great start to the week!
Sweet dreams boys. We love you. Zander, keep moving along.
Clancy

Thursday, September 11, 2008

Thursday, September 11, 2008 in the Evening

Now you see me, now you don't...but guess what you will be seeing more of me soon when I go home. Today my Mommy and Daddy tentatively found out that they will be staying with me at the hospital next Friday and possibly Saturday night. If they behave, they will likely let me go home next weekend. Thanks goodness! Everyone has been telling me about this home thing, but I am not quite sure it exists. Likewise, me and the boys here in Pod 4 have overheard that there are these pools of water in homes that they put us in to get us clean, but we are not quite sure they exist either. If true, hopefully I will continue to get my sponge baths by pretty women.
In all seriousness, I am looking at coming home next week. I have an MRI on Friday morning (tomorrow) and they are also running a cranial ultrasound on me as well to see how my brain is doing. The big factor for me coming home is still my ability to eat my food. At this point Dr. Kelley has not increased my food, but hopefully he will do so tomorrow or Saturday. I asked him if he had a take out menu, but he did not think that I was quite ready for Krystals or Taco Bell.
My Grandma Judi came to see me today from Knoxville and she and I hung out for a while. She held me and talked to me, I think, but I am not for sure because I was asleep most of the time. My team of nurses, doctors and case workers are in the process of getting my supplies, machines and other things ordered.
Mommy and Daddy came to see me this afternoon and mommy changed my trach and held me while Daddy talked to me.
I know a lot of people have been looking in on me and I am thankful that they do. I am also thankful that they have given my parents encouragements while I have been here. Feel free to continue to write to me or leave a comment as Daddy told me that he is saving all of them for me so I can read them when I get home to pass the time.
It is late for me and I should be getting to bed. Ms. Amy, my nurse is feeding me soon, so I am going to go pitch a fit to see if she will feed me sooner. I plan to rest for most of the night and I keep moving along. Please say a prayer for my parents as they are excited about getting me home. I can see why they feel that I have been here long enough, but I have been in good hands and God keeps watching over me.
I will write again soon, but for now, I will keep moving along. Tell my big brothers I love them and I cannot wait to get home to see them. I heard they had a good day at school.
Love to everyone.
Dictated by Zander and transcribed by Clancy

Tuesday, September 9, 2008

Tuesday, September 9, 2008, in the Evening

Good evening all. Today has been a good, but long day. Zander's procedure was scheduled to take place at 12:55, but surgery was backed up and he did not go to surgery until about 3:30 p.m.
The procedure to dilate his esophagus went well. Dr. Kelley told us that it was much more open than he anticipated. He did open it more. Zander will have to have this done every 2 weeks or so for the next few months. The reason he has to have it done so frequently is to ensure that the site where his esophagus is connected together does not become firm. Stated another way if Dr. Kelley does not do this the surgical connection site will become rigid and the scar will harden.
Dr. Kelley told us that he also put die into the stomach to check the reflux issue. Praise God, there is no more reflux. Dr. Kelley said he saw no sign of reflux whatsoever and the fundoplication was well connected and healing properly.
We also asked Dr. Kelley his thoughts on what needed to take place from his perspective before Zander could go home. Dr. Kelley said that Zander has endured everything he has been through better than any baby with these problems that he has seen. THERE IS NO DOUBT IN MY MIND THAT EVERYONE'S PRAYERS AND THE GRACE OF GOD HAS MADE THIS POSSIBLE. Dr. Kelley said that Zander's stomach needed to be able to handle 75 ml of food every 3 hours in order to be able to go home. At present he is on 45 ml every 3 hours during the day. He is already getting 75 ml every 3 hours in the evening, but he is receiving this on a continuous basis (25 ml every hour) verses all in one sitting. As a result, Dr. Kelley said that within "a week or two" assuming he continued to do well, Zander's stomach should be able to handle the 75 ml at a time. YEAH!!!!!!!
There are other issues to take into account before he can go home, but the largest is his ability to handle enough food in his stomach. He is going to have his MRI on his spine on Friday. They will have to sedate him otherwise, he will not stay still. Christie and I are training on the aspects of his care and we should be talking to Pearl, the social worker about ordering medical equipment, coordinating in home nursing services, and scheduling the numerous follow-up appointments for Zander.
Today has been a good day for all of us, but especially for Christie and I. We both wanted to talk with Dr. Kelley about getting him home and he is pretty much on track with what everyone else has indicated to us.
Houston and Jackson are sound asleep and Christie and I are not far behind them. God is always good, but today, I felt it more...
Sweet dreams boys. Sleep well Zman and keep eating. Keep moving along. We love all three of you dearly.
Clancy

Tuesday, September 9, 2008 in the Morning

Good morning all. Just a quick update from last night's post. Zander is scheduled to be taken to surgery for the esophagus dilation today at about 12:55 p.m. Chances are he will be taken a little earlier than this. We are pretty sure that he will be put under anesthesia. The procedure does not take long but we pray that everything goes well. I will keep everyone posted. Thanks, as always for the prayers covering our family. Clancy

Sunday, September 7, 2008

Sunday Night September 7, 2008

Hello everyone. We hope everyone is rested up and ready for a new week. It has been a hectic, but restful weekend. Jackson's team won their soccer game and Houston and I took Jackson to a birthday party today. This allowed Jackson to burn off the excess energy that he had earlier today.
Zander is doing well. Christie and I have been training on his trach care and other aspects of his care. IT APPEARS THAT THERE IS A GOOD CHANCE THAT HE WILL BE COMING HOME IN THE NEXT 2 OR 3 WEEKS ASSUMING HIS CONTINUES TO MOVE FORWARD AS HE HAS BEEN. According to the medical staff, he will likely need private duty nursing around the clock for a period of time, but we should know more this week. We will likely be talking with Pearl, the case worker at Erlanger about ordering his medical equipment and other aspects of scheduling him to come home.
Zander's feeds have been increased. He is now receiving 20 ml every hour on a continuous basis from 8 p.m. until 8:00 a.m. He will continue to receive 30 mls at 8 11, 2 and 5 during the day.
We were advised today that Zander did not pass his 2nd hearing test. I do not know the ramifications of this, but we are praying that his hearing is fine. Hopefully his hearing is in some way related or delayed by his nostril/sinus problems. We are also praying that his MRI test (scheduled for Monday) will be of benefit in planning a course of action on his vertebra issue. Zander will also have an ultrasound on his head to compare the prior ventricularmegaly studies (before birth) to now.
As the pictures above show, Zander is alert and curious about his surroundings. According to his nurse Dallas, Zander slept all through the night and did not wake up until 9 this morning.
Thanks to everyone for the prayers for our family. They are still needed and if we can pray for you, please let us know. We hope Ethan, Eli, Chad and Amber are doing well. Since Georgia won yesterday, I am sure all is well in Calhoun, GA. We hope everyone gets off on the right foot tomorrow.
Sweet dreams boys.....we love you.....rest well.
Zander, I know you hear us, but if you don't, know that you are loved by many, especially Mommy and Daddy. Keep moving along.
Clancy

Friday, September 5, 2008

Friday, September 5, 2008 in the Evening

Hello everyone. TGIF. Although it was a short week, it has been a long week. We hope everyone is doing well and is gearing up for a nice weekend. Jackson has a soccer game in the morning and it appears that the weather here is going to be nice. Congrats to Steve and Melissa, some friends of ours, on the birth of their son, we cannot wait to meet him. We hope all is well in Birmingham.
Zander had a good day. I met with the pediatric orthopedic surgeon about his vertebra. Zander has a hemi...not not that type of hemi, but a hemi-vertebra. Essentially his little body formed in the womb a partial vertebra was formed at the T-3/4 (thoracic 3 or thoracic 4 vertebra) which is basically right between his shoulder blades. Due to the partial formation of the vertebra the ribs that should go with the T2 and T3 vertebra on the left side are instead part of this partial vertebra. As a result, as Zander grows, if not surgically corrected, his spine would tilt to the left. Thus, surgery will be needed at some point to fuse the vertebra in this region together. Fortunately, the vertebra in this area are relatively rigid and will not affect his mobility to a significant degree. He also has an extra first rib at the top of his spine which is likely the result of the hemi-vertebra malformation. Only time will tell what, if anything needs to be done to this rib; however, surgery will likely be needed to remove the rib.
At this point, the orthopedic doctor, Dr. Moses is ordering an MRI to more closely examine Zander's spine. We will keep everyone posted on this issue.
Zander's jaundice is being controlled by medication and his GI doctor said he thinks the jaundice will resolve itself in the coming days.
As far as his left nostril is concerned, Dr. St. Charles wants us to schedule a visit with him 3 to 4 weeks after bringing him home. He said that by that time the structures in his nostril will have grown apart more and he will be in a better position to see what needs to be done to correct the problem.
As the pictures show, Zander likes his mobile and I helped Dallas, his nurse, bathe him earlier today. He is looking better and he has not had any reflux into his mouth or nose that had any food in it. For now, it appears that the reflux is non-existent.
We remain positive about Zander's progress, but sometimes it seems that with each good day we only learn of another problem that Zander has to overcome with surgery. God is still in control and we know that he will take care of it all, but I am truly amazed at what our son has endured. Just think, he has never seen the light of day (literally) and yet he has endured so much. It is frustrating, worrisome and miraculous all wrapped together.
We are truly thankful for the care he is receiving. Everyone has been great. We just want him home and the length of his journey in ICU is starting to take its toll on me for sure, but I know Christie feels the same way. With each new day brings new grace and this has become the promise that we live by.
Thanks to everyone for prayers, comments, phone calls, food and reassurance about Zander. We can never repay the support, but we will sure try to if we can.
I will write again tomorrow if not sooner. Zander, be sure to give your Mommy some good love as she is on her way to see you. Rest easy son...stay strong...keep moving along.....
Sweet dreams Houston and Jackson, we love you.
Clancy
P.S. The picture of the cow was taken outside Jackson's school today and has to do with a fundraiser.

Wednesday, September 3, 2008

Wednesday, September 3, 2008

Good evening all. It has been a pretty good day here in Chatta-Vegas. The boys are bathing before going to bed and Zander had a good day.
Late last night, Zander was taking off the ventilator and returned to the moist air mask covering his trach. Earlier this morning, Dr. Kelley also allowed Zander to resume eating through his G-tube. He is getting 15 ml every 3 hours and each feeding is taking about 30 minutes. The hope is that each feeding will slowly expand the stomach and that the length of each feeding will keep the stomach expanded until his next feeding. This is good news. Thus far, there has been little reflux, but only time will tell.
Christie, Jackson and I visited Zander this afternoon. He is now in a crib (Ethan's old bed) and is resting rather comfortably. The above pictures show Zander in his new crib (no pun intended).
It has been a good day for Zander, but a long day for all of us. Tomorrow, Zander will undergo a CT-Scan to see how his ventricularmegaly is doing (spaces between the ventricles in his brain) and also to see how his nasal passage is doing. As you will recall, the ventricularmegaly was and continues to be a significant issue with Zander and now that everything is connected, they feel it necessary to see how he is doing. The left nostril is also narrow and they are trying to kill two birds with one test as opposed to running two separate tests. In the next few days he will also have a renal ultrasound to check on his dilated kidney (left).
I will keep everyone posted on Zman's progress, but today, as mentioned above, was a good day. I will write again tomorrow...if not sooner. Thanks to all for the prayers, comments and encouraging words. Please pray for a good friend of mine as it appears that cancer is present in his lymph nodes. Old man, you have alot of fight left and God is still in the business of miracles and healing. I will see you soon.
Rest easy boys and keep moving along. Good night Ethan, Eli, Amber and Chad. We hope all is well in Calhoun, GA. You are in our prayers.
Keep moving along Zman. We love all of you.
Clancy