Good evening all. We hope that everyone is having a great week. Fall is definitely in the air and the weather is wonderful. This time of year in East-Tennessee is beautiful. Above are pictures of the Zman during physical therapy. The first one of him is his way of saying "your hurting me". The second one is of him saying "I'm going to the bathroom" and the third one is of him saying "Look, I'm a big boy!"
Jackson and Houston are at Jackson's soccer practice tonight. This is the last practice of the year and the last game will be this weekend. School is going well for both of them and they have been a great help around the house in recent days. School pictures for Jackson are tomorrow so I am sure that we will have to get up a little early to make sure everything is copacetic with his hair in the morning.
Zander saw Dr. Devoid (his GI doctor) yesterday. Great news. His liver enzymes are where they need to be and he no longer has to take medicine for the cholestasis (jaundice). More importantly, Christie learned how to take out the feeding tube and place a new one in. According to Christie, the doctor took it out and dropped it on the table and said "Okay put it back in." Neither she or I have taken the feeding (G-tube) out and changed it before so after she overcame the abruptness of it being out, she was able to successfully pull it out. Lastly, Dr. Devoid said that he no longer needs to see Zander!!!!Yeah! One doctor down 12, 13 or maybe 10 to go.
Zander also had his esophagus dilated today by Dr. Kelley. We were at the hospital today at 6:00 a.m.; however, we were not released until this afternoon. Dr. Kelley said the esophagus was significantly restricted, but this was to be expected. The procedure went well and Zander has slept for the most part since then. We will see Dr. Kelley again in three weeks for another dilation.
We have heard from Ethan's parents. His is currently about 12 pounds and is doing great. They did go to the transplant specialist in Cincinnati, and thank God, they have been approved for the transplant program. We are so happy for them and it was good to hear from them. We will keep you posted on Ethan's progress.
Tomorrow, we go to see Dr. St. Charles, Zander's ENT doc. We pray tomorrow goes as well as the past two days. We pray specifically for good news regarding Zander's cohanal atresia and hearing issues. We know that Dr. St. Charles is a great doctor and we hope (and pray) that Zander will be able to hear soon.
Please keep Raymond Powell, Ethan and Dr. Ted in your prayers. Thanks to everyone for the comments. It has been hectic and these kind words keep Christie and I going each day.
I will write again soon. Love to all,
Until then,
We love you boys. Sleep tight. Smile big tomorrow Jackson. Keep moving along Zander.
Clancy
7 comments:
Ok I have decided that that baby wants to come live with me!lol He is just the most cutest baby in the world...ok Ill stop.... Im so glad he is doing great...its God..He can show off in Zander anytime...Right..He just wants to make sure we are paying attention..lol
Well I love you guys very much,
Christy
As soon as I saw the ZMan and that big smile I knew he was hanging out with his physical therapist...we have that effect on people. :-) Looks like some good trunk stabilization work is going on....aren't you glad I'm not closer--what a pain I would be. Thanks, as always, for keeping us updated. We know it musy be hard as tired as you are but we really do appreciate it. Hang in there.
Much love,
Aunt Heidi and family
Zander is so cute and such a precious child. We are still praying for him and are believing that all will go well for him. Sorry I haven't put anything in here for a while, but my computer has been down. I have gone to the library to keep up with ya'all though. The boys are precious too, and we can see that they are very taken with the Zman. Love, and praying for everyone. Cele
Yay for one less doctor to visit! Woohoo Zander....nice progress buddy!
Ok i pray that Jackson has a good hair day tomorrow and has his picture taken before lunch.
I pray that Zander would hear the sweet angels singing over him tonight.
i pray that Houston knows what a great helper he is to his parents.
i pray for extra strenght for Christie and Clancy and that Clancy will given Christie a foot massage.
bunches of love ,
Jill
Good job in physical therapy, Zander! Soon you'll be benching your body weight. You sure are growing fast and getting more handsome by the day! You and your two brothers are going to have a time keeping the little girls at bay!
I'm praying for a peaceful week that includes rest and laid-back family time for you, Christie and Clancy.
God Bless,
Janet Tilley
WE have you in our prayers everyday.We're praying that Z Man
will be able to hear.
Love,
Uncle Lloyd & Aunt Bonnie
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