Good evening all. We hope that everyone is having a great week. Fall is definitely in the air and the weather is wonderful. This time of year in East-Tennessee is beautiful. Above are pictures of the Zman during physical therapy. The first one of him is his way of saying "your hurting me". The second one is of him saying "I'm going to the bathroom" and the third one is of him saying "Look, I'm a big boy!"
Jackson and Houston are at Jackson's soccer practice tonight. This is the last practice of the year and the last game will be this weekend. School is going well for both of them and they have been a great help around the house in recent days. School pictures for Jackson are tomorrow so I am sure that we will have to get up a little early to make sure everything is copacetic with his hair in the morning.
Zander saw Dr. Devoid (his GI doctor) yesterday. Great news. His liver enzymes are where they need to be and he no longer has to take medicine for the cholestasis (jaundice). More importantly, Christie learned how to take out the feeding tube and place a new one in. According to Christie, the doctor took it out and dropped it on the table and said "Okay put it back in." Neither she or I have taken the feeding (G-tube) out and changed it before so after she overcame the abruptness of it being out, she was able to successfully pull it out. Lastly, Dr. Devoid said that he no longer needs to see Zander!!!!Yeah! One doctor down 12, 13 or maybe 10 to go.
Zander also had his esophagus dilated today by Dr. Kelley. We were at the hospital today at 6:00 a.m.; however, we were not released until this afternoon. Dr. Kelley said the esophagus was significantly restricted, but this was to be expected. The procedure went well and Zander has slept for the most part since then. We will see Dr. Kelley again in three weeks for another dilation.
We have heard from Ethan's parents. His is currently about 12 pounds and is doing great. They did go to the transplant specialist in Cincinnati, and thank God, they have been approved for the transplant program. We are so happy for them and it was good to hear from them. We will keep you posted on Ethan's progress.
Tomorrow, we go to see Dr. St. Charles, Zander's ENT doc. We pray tomorrow goes as well as the past two days. We pray specifically for good news regarding Zander's cohanal atresia and hearing issues. We know that Dr. St. Charles is a great doctor and we hope (and pray) that Zander will be able to hear soon.
Please keep Raymond Powell, Ethan and Dr. Ted in your prayers. Thanks to everyone for the comments. It has been hectic and these kind words keep Christie and I going each day.
I will write again soon. Love to all,
We love you boys. Sleep tight. Smile big tomorrow Jackson. Keep moving along Zander.