Hello all! I hope everyone had a good Thursday. The boys and Christie had a good day in school and are are their way home as I type. Zander's Thursday was good, but we received news of a setback. He had the barium test earlier today and it confirmed that food is in fact going into the esophagus, but it is also going into his lungs.
According to Dr. Kennedy (neonatologist), the food is taking the path of least resistance and the esophagus is not squeezing the food down properly. Parts of his esophagus squeeze and parts do not. Essentially, his esophagus is not pushing the food down as ours does. Dr. Kennedy said that in all likelihood this will correct itself with time, but for now the bottle feeding has been stopped due to the risk of Zander aspirating.
Dr. Kennedy also had a long conversation with Dr. Kelley (the surgeon) after the test today. It appears that Zander will undergo the fundoplication (Google it) surgery in about 2 weeks. This is the surgery that I talked about earlier where they will wrap the upper part of his stomach around the esophagus to reduce the extreme reflux.
At this point in time, they are feeding Zman through the Gtube and letting him rest. They are increasing his caloric intake with the liquids and keeping his 45 ml feedings the same with the hope of making him stronger and bigger before surgery. Essentially they are fattening him up before surgery.
Although this surgery was a distinct possibility following his prior surgery, it is hard to say that this is exactly good news. We hate that he will have to have all the tubes put back in (the chest tube and likely the tube in the nose), but we realize that this is the best course of action.
Zander remains happy and carefree. He is starting to focus in with his eyes so it has been great to spend time with him. It will be hard to see him revert to a semi-conscious state after seeing him bright eyed and bushy tailed, but God is in control.
The nurses, doctors and the entire medical staff have been great. Even Jim, the parking lot attendant asks me everyday how "the baby" is doing. We know that God has big plans for the Zman and pray that he will continue to watch over us all.
I will write again tomorrow night or Saturday morning. Until then, I wish everyone a happy and safe Friday. The smell of high school football is in the air. Thanks as always for the comments, prayers and encouraging words.
Rest easy Houston, Jackson and Zman....keep moving along. Mommy and I love all of you.