Zander has been busy the past few days. He has been out in the neighborhood the past few days and we took him on a long walk this afternoon. Earlier today, he visited with Dr. Ledbetter, his pulmonologist. Dr. Ledbetter said that everything looked good and he actually discontinued the use of the apnea monitor. Yeah!!!!! That is one less monitor that he is on. The only monitor that he is on now is the SAT monitor which measures the oxygen saturation in his blood. Better yet, he only has to be on it at night as long as we keep a close watch on him. Of course the nurses are keeping a close watch as well.
Zander also went to physical therapy today and it went well. We did get some bad news today after he had a more complete hearing test. At this point, it does not appear that he is hearing anything. The audiogram was not an all inclusive test and Christie and I are still praying that the coanal stenosis (narrow nasal and sinus cavity on the left) is a significant factor in his lack of hearing, but I am worried about his lack of hearing at this point. The audiologist has referred us to his ENT (who we see in about two weeks) and hopefully he will give us better news in this regard. Each day with the boys, including Zander is a blessing, but I am down on the hearing issue at this point. I know that whatever the outcome, it will be okay, but the little guy has overcome so much already...it just is frustrating.
Chrisite and I have decided that Zander will be more mobile with us around the house. He has now been home for two weeks and since he does not have as many monitors anymore, he is going to be with us where we are in and around the house. If we watch the game downstairs, Zander will be there. If we are on the porch, he will be there. He has essentially been in his room for the past two weeks and now is the time to include him in family activities. In fact, he watched the nightly news with us tonight before the nurses' shift change.
Thanks again to everyone for the comments, prayers and encouraging words. Please keep Raymond Powell and Ethan in your prayers. I did hear from Ethan's mom and they are headed to Cincinnati this weekend, so please bathe them in prayer as they meet with the specialist for Ethan. We will keep praying for them and also for Zander's many issues including his hearing. Let us know if we can pray or help any of you in any way.
Godspeed Ethan. We hope you have a safe trip and a good visit with the specialist.
I will write again soon.
Rest easy boys...Play hard tomorrow Jackson. Keep moving along Zman. We love each of you.