Friday, October 3, 2008

Friday, October 3, 2008 in the Evening

TGIF everyone. We hope everyone has big plans for the weekend. Jackson has a soccer game tomorrow and it appears that Houston and I will be watching a little football with the Zman tomorrow.
Zander has been busy the past few days. He has been out in the neighborhood the past few days and we took him on a long walk this afternoon. Earlier today, he visited with Dr. Ledbetter, his pulmonologist. Dr. Ledbetter said that everything looked good and he actually discontinued the use of the apnea monitor. Yeah!!!!! That is one less monitor that he is on. The only monitor that he is on now is the SAT monitor which measures the oxygen saturation in his blood. Better yet, he only has to be on it at night as long as we keep a close watch on him. Of course the nurses are keeping a close watch as well.
Zander also went to physical therapy today and it went well. We did get some bad news today after he had a more complete hearing test. At this point, it does not appear that he is hearing anything. The audiogram was not an all inclusive test and Christie and I are still praying that the coanal stenosis (narrow nasal and sinus cavity on the left) is a significant factor in his lack of hearing, but I am worried about his lack of hearing at this point. The audiologist has referred us to his ENT (who we see in about two weeks) and hopefully he will give us better news in this regard. Each day with the boys, including Zander is a blessing, but I am down on the hearing issue at this point. I know that whatever the outcome, it will be okay, but the little guy has overcome so much already...it just is frustrating.
Chrisite and I have decided that Zander will be more mobile with us around the house. He has now been home for two weeks and since he does not have as many monitors anymore, he is going to be with us where we are in and around the house. If we watch the game downstairs, Zander will be there. If we are on the porch, he will be there. He has essentially been in his room for the past two weeks and now is the time to include him in family activities. In fact, he watched the nightly news with us tonight before the nurses' shift change.
Thanks again to everyone for the comments, prayers and encouraging words. Please keep Raymond Powell and Ethan in your prayers. I did hear from Ethan's mom and they are headed to Cincinnati this weekend, so please bathe them in prayer as they meet with the specialist for Ethan. We will keep praying for them and also for Zander's many issues including his hearing. Let us know if we can pray or help any of you in any way.
Godspeed Ethan. We hope you have a safe trip and a good visit with the specialist.
I will write again soon.
Rest easy boys...Play hard tomorrow Jackson. Keep moving along Zman. We love each of you.
Clancy

7 comments:

Anonymous said...

It was so good to see you guys this afternoon at Holiday Hodgepodge!

I know you are discouraged about Zander's hearing, but just remember to focus on the healing power of Jesus.

Focus on all the answered prayer thus far and less on the obstacles of today. I often say "what we focus on we empower." So when I am down I make the choice to focus on the resurrection power of Jesus Christ, not the stumbling blocks placed in our path by the enemy.

I continue to pray for a complete healing for Zander, hearing and all!

Many continued blessings to all of you!

Love,
Amy Dover

Anonymous said...

It was so good to see you guys this afternoon at Holiday Hodgepodge!

I know you are discouraged about Zander's hearing, but just remember to focus on the healing power of Jesus.

Focus on all the answered prayer thus far and less on the obstacles of today. I often say "what we focus on we empower." So when I am down I make the choice to focus on the resurrection power of Jesus Christ, not the stumbling blocks placed in our path by the enemy.

I continue to pray for a complete healing for Zander, hearing and all!

Many continued blessings to all of you!

Love,
Amy Dover

Anonymous said...

Hmmm...

Didn't know I hit the publish button twice!

Sorry,
Amy

Anonymous said...

Just wanted you to know we're still keeping up with and praying for you all. There is a beautiful song that says of God, "when you can't see His hand, trust His heart." We love you all!
The Zieglers

Anonymous said...

Zander looks so good...... sorry to hear the news about Zander's hearing. We serve a BIG God and He has brought Zander this far.... I am believe for a miracle.
Much love
Jill

Anonymous said...

Ok Clancy...Oh ye of little faith!!! If Jesus can heal the blind, He can heal Zanders hearing....if its His will and if he wants to leave Zander like he is..We will learn sign language!!! So think positive and just pray the desires of your heart,,,Is that what His word says we should do?? I will continue praying..and dont worry God is always in control!

Love you guys,
Aunt Christy

Anonymous said...

He's just so beautiful! Zander has come so far and he can make it the rest of the way too! Pic looks as if he is a redhead? I know you guys must be exhausted, but just lean on each other and keep believing in miracles.