Good evening all. Short and sweet tonight as it has been a long day. Zander did not have the MRI today. They moved it to Friday as he will have to be sedated to keep him still. He is having a procedure performed tomorrow by Dr. Kelley to open (dilate) the esophagus. The nurses say it will be a quick procedure, but we are praying it goes well. Zander will have to have this done periodically to make sure the esophagus expands and grows with him.
Christie and I went to a CPR/Infant Care class tonight. It is a prerequisite and we also have to have additional training on CPR involving the trach. Christie and I saw the Zman earlier and he is doing well. He is now 10 lbs 1 ounce, and given the fact that his feeds have been increased to 45 ml during the day and 2o ml every hour throughout the night, it appears he will only be getting bigger.
Thanks to everyone for the prayers, comments and encouraging words. They truly mean a lot to us.
I will write again tomorrow night and we are continuing to pray that the procedure goes well tomorrow. I hope all is well with Ethan and his family.
Rest easy boys....sleep well Zman. Keep moving along.
We love you boys!
Clancy
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